I went in for my biliruben count today. I told them I was sure it had gone up because I'm as yellow as a lemon, but it was an 8.8, which is down a full point from last week. I have felt good today. Yesterday was rough because I felt nauseous most of the day. I took my nasusea meds twice, and stayed down because I felt like I would vomit, which would not be a good thing for me.
Dr. Abrass called today to see how I've been doing and I asked him when I can start a low-dose chemo. He said that he and Dr. Coe (the SF oncologist) are in agreement that I cannot start even a low-dose chemo until my bili count is down to a 4. He also wants to see what Dr. Warren (the SF liver surgeon) says on Wednesday before we do anything. He reassures me that Dr. Warren can do amazing things. I reminded him that I am like a time bomb ticking and I want to start treatment. He is aware of this, but I still can't start yet.
I want to express my heartfelt gratitude for the many people who are praying for me and helping me and my family get through this. Thank you all - it means so much to me!!!
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We are glad to hear your count went down. As others have said, "You are amazing and strong"! Please let Julie know if there is anything we can do!
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