I went to the oncologist in San Francisco today. My biliruben count is back up to a 9, and that has to come down before I can start chemo. That wasn't news to us. They need to do a contrasting procedure, where they put dye into me to see why things aren't draining. I had that before and ended up with pancreatitis and a week long hospital stay. Instead of having us travel back and forth, they were able to schedule us for tomorrow at 1:00. I will stay in the hospital and hopefully be able to come home on Saturday or Sunday.
They also said that the outside stents are draining as they should, and as inconvenient as it is for me, they need to stay. Depending on what they see with the dye, they may try to get an internal stent placed. The bottom line is that I need to have this biliruben count down for chemo. I am nervous about this contrasting procedure; it was very painful last time, plus there were complications that followed. I am hoping to avoid that this go around.
We were not exactly prepared for a three day stay, or for this cold weather. I wore the jumper with sweat pants under it and flip flops. Good thing it's San Francisco; surely I wasn't the oddest dresser around. We walked around the mall for a while trying to find a few things for our extended stay, and the walking really helped the burning in my back feel better. We found a new hotel, one without Japanese anime artwork on the walls. I couldn't have the flower with two big eyes looking at me again tonight!
I'd love to be home, but I really want to have this done and have it work so I can start chemo. It sounds like I have a long road ahead to get better. Your strength and support means so much to our family. Thank you!
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4 comments:
Hang in there, it sounds like you are in the right place to get the best treatment. Hopefully this time the procedure that you need won't be painful or have any complications. You are an amazingly strong person and I know that you will get through this. Good luck tomorrow!
Love the Corkills
Ditto what the Corkills said! I told John that the positive is that the very best specialist in livers is looking at the test and making the decisions - couldn't ask for more. Hey...I was born in SF and it is my old stomping grounds - but you are right that you can wear anything (or nothing) there!!! That can be good or bad! Hope they can get more draining going and get "Billy Rubin" down for the count!
Stay strong!
Love,
Norlene and John
Sheri,
Our thoughts and prayers are with you and your family. We love your positive attitude, it will only help. We hope all goes well tomorrow. We send all our love.
Clint, Lori,Clinton and Ashley
There is no place like san fran that's for sure. Hope it's good to you. Hang in there we are praying for you. Love the Langs
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